A new AI tool called Mirror is now free for two years for patients with rare diseases, converting doctor visits into clear summaries. The app, developed by Aide Health in partnership with Alexion and AstraZeneca Rare Disease, assists users in documenting and reviewing medical discussions.
The app helps users remember and act on information from multiple appointments and specialists. It reduces anxiety and uncertainty in complex care by allowing users to revisit what was discussed and share notes with relatives, carers, or clinicians.
Rare Disease Challenges
More than 3.5 million people in the UK live with a rare condition, and they face long diagnostic journeys and repeated appointments. The volume of unfamiliar medical information can make it difficult for them to absorb what is said and understand what comes next.
Families and carers often help people living with rare conditions keep track of information. However, research found that 47% of people living with a rare disease felt their healthcare providers did not share information effectively, while 40% rated collaboration between doctors and services as poor or very poor.
App Benefits
Deborah Richards, VP & General Manager UK and Ireland at Alexion, said: “Our partnership with Aide Health will give them and their families a practical way to capture important information, revisit it in their own time and feel better prepared for conversations about their care.”
Mirror helps people understand and keep track of their care. It does not diagnose conditions, recommend treatments or make clinical decisions, and it is not a replacement for advice from a doctor, nurse or other healthcare professional.
Personal information is handled securely and meets the highest standards of privacy and data protection. The app’s performance is regularly monitored and reviewed to ensure it continues to work safely, effectively and fairly. Mirror is a Class I Medical Device registered with the UK regulator, the MHRA, and is transparent about its use of AI, with safety, accuracy and data protection prioritised throughout its design.
Launch and Impact
He noted that one in four people wait at least five years for a rare condition diagnosis. Mirror acts as the patient’s consistent record, helping make this complexity more manageable.
Mirror is available through the Apple App Store and Google Play, supporting the UK Rare Diseases Framework priority of better coordination of care and the England Rare Diseases Action Plan’s emphasis on using digital technology to give people more accessible information and support in managing their care.
